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Advocacy Specialist in Washington, DC at Muscular Dystrophy Association

Date Posted: 4/21/2018

Job Snapshot

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Job Description


Our Values are our strength:  We believe in MUSCLE:     

Mission:  We’re driven to accelerate progress for families and muscle health.

Understanding:  We’re attentive to our constituent’s needs and each other’s.

Stewardship:  By investing precious resources wisely, we drive the best possible outcomes.

Collaboration:  We foster win-win partnerships and build communities.

Learning:  Knowledge powers our success and empowers our people.

Excellence:  We strive to do our best and exceed constituents’ expectations.


Position Description:
The Advocacy Specialist reports to our Director of Advocacy and works within our Mission team to boost MDA’s advocacy and public policy efforts. MDA is dedicated to advocating for policies and programs that benefit the lives of those living with neuromuscular disease. The Advocacy Specialist assists the Director of Advocacy with building momentum around advocacy efforts and supporting policy efforts that benefit the neuromuscular disease community. The Advocacy Specialist will partner with members of the organization to spread awareness about initiatives and connect with the community for continued support and will drive grassroots engagement, including engagement with the MDA Ambassador program.


  • Attend and prepare written summaries of meetings, symposia, Congressional hearings, and other events as requested.
  • Track legislation and policy initiatives and prepare reports.
  • Coordinate grassroots engagement, activities and initiatives.
  • Post to social media platforms and website.
  • Support development and dissemination of internal and external communications.
  • Prepare correspondence to Congressional offices, advocates, and others as requested.
  • Assist with Capitol Hill, agency and coalition meetings and prepare leave behind collateral.
  • Coordinate with National Resource Center and Program Development department on a regular basis to ensure consistent integrated activities.
  • Assist in policy & advocacy conference, meeting, and event planning as requested.
  • Prepare materials for and support training and educational activities and events.
  • Support MDA conference and symposium activities.
  • Manage advocacy technology platform and support development and dissemination of regular advocacy communications
  • Maintain advocacy activity calendar.
  • Perform other related duties as required and assigned.


  • Communication Skills - Clearly and persuasively communicate, listen and seek clarifications; participate in meetings, write clearly and informatively, comfortable with public speaking.
  • Professionalism - Work well in a fast-paced environment; treat others with respect and consideration; accept responsibility for own actions. Understand business implications of decisions, align work with strategic goals, complete administrative tasks and develop strategies to achieve organizational goals.
  • Teamwork – Balances team and individual responsibilities; Exhibits objectivity and openness to others’ views; Gives and welcomes feedback; Contributes to building a positive team spirit; Puts success of team above own interests; able to build morale and group commitments to goals and objectives: Supports everyone’s efforts to succeed.
  • Visionary Leadership –Displays passion and optimism; Inspires respect and trust; Mobilizes other to fulfill the vision; Provides vision and inspiration to others.
  • Organizational Support - Follows policies and procedures; Completes administrative tasks correctly and on time; supports organization's goals and values; Supports affirmative action and respects diversity.


  • Bachelor’s degree required, with a minimum of two years of policy and/or advocacy experience at the national level, preferably in the areas of health and/or physical disability.
  • Capitol Hill, administrative agency and/or campaign experience preferred, but not required.
  • Ability to manage large national network of advocates.
  • Strong writing and analytical skills.
  • Strong computer skills, including Microsoft Office, and ability to use (or learn) advocacy software platforms.
  • Working knowledge of how to use social media platforms.
  • Ability to work collaboratively and coordinate across multiple departments
  • Ability to multi-task
  • Strong organizational skills
  • Ability to communicate in a consistent, proactive and inclusive manner

 MDA is an Equal Opportunity/Affirmative Action employer. All qualified applicants will receive consideration for employment without regard to race, color, religion, sex, national origin, disability, or protected veteran status.